Follow Up

I just finished with my followup appointment with my primary care doctor. We talked about the extreme fatigue episode that I had on Saturday. She thinks that this episode was brought on by depleting my energy stores and dehydration. I was expending more energy than my body had available when I was dancing. In order to avoid this happening again I need to stay hydrated, rested, and always have food on hand. The other thing we did at this followup appointment was get a referral to a neurologist at Stanford that specializes in Dysautonomia. Now we just have to wait to schedule an appointment.

And I am back...

We got home from the ER around 2 am this morning. I continued to slowly regain control of my muscles. It took about 4 hours to regain total control. While we were in the ER they ran a lot of blood tests. The majority of them came back as normal, but my ammonia and bilirubin came back slightly elevated. They actually had to do the ammonia blood test twice because the first time it was not put on ice fast enough. We are still not exactly sure what happened last night. But one of the symptoms of high ammonia is extreme fatigue. So that is a possibility. Ammonia is created in the liver as a part of processing nitrogen.  As of right now I feel fine. I will be following up with the cardiologist, pain clinic, and neurologist, but until then we are crossing our fingers that this extreme fatigue is not a recurring symptom.